Tuesday, June 30, 2009

Tuesday june 30th.......Update

Today was Charmaine's 2nd day of round #5 of chemo treatment. She has had a wonderful day totally uneventful for side effects!!!!!!!!!!

Also, she had her 1st spinal tap with chemo today and did not even feel it. She had no headache afterwards. Both of these are miracles. Has one more spinal tap on Friday.

Natalie is with her tonight.

We will probably get to come home late Friday or early Saturday morning.

Could not hope for things to be going better. Please pray the rest of the week will be the same.

I miss her terribly at home when she's gone.

Thanks for reading, caring, and praying for her.

Sam

Monday, June 29, 2009

Monday June 29th...Back in Emory 5th Round Chemo

We checked in this morning at 9am for her 5th and final regular round of chemo. She has reached full remission much earlier than normal and is now ready for the transplant. This round will take 5 days. Hope to come home Friday. She will have to come back in about a week for 6 days of recovery then will be at home for 30 to 45 days just resting and getting strong for the transplant.

Feeling fine now just waiting to get chemo started.

Will keep you posted on progress.

Sam

Friday, June 26, 2009

Friday June 26th...Clinic visit..Great News!!!

Charmaine is feeling fantastic. Best since since she was diagnosed.

We went to the clinic today for scheduled lab test on her blood #'s. All checked out good.

Her main Dr. came in today and told her some really great news. First of all, she is still in full remission. That means she is still responding well to the treatments and is ready for the transplant.

He also said that she would only have to have one more round of chemo before the transplant!!!!!!!!!!!!!!

We will check in Monday at 9am for the 5th round. That will take 5 days. Then we come home for 4 or 5 days then go back for 5 or 6 days of recovery.

After that, she will have 30 to 45 days here at home to get stronger and rest for the transplant which he said will be mid to late August. I am sure during that time we will be going back to the clinic for tests but no more chemo till the transplant.

I can't tell you how excited she is right now. It is very possible that by Christmas she will be feeling well and be able to be with the family.

She will be in the hospital for 4 to 6 weeks for the transplant. Then we have to go back to the clinic every day for 100 days afterwards.

Thank God He spared her going through all 8 regiments of the chemo to reach remission.

Pray that the donor will be able to keep the schedule the Dr. has planed.

Thanks for all your prayers.

Sam

Thursday, June 25, 2009

Thursday June 25.......Update

I am so sorry for not updating the post for the past couple of days.

Charmaine is still home and feeling great. She has had two near normal days. She says it feels so good to feel good again. This is the first time since this started in March that she has felt near normal for any length of time. It has give her new hope and a much better outlook for the future.

We will go back to the clinic Friday but do not think she will have to check back in for round #5 until Monday or Tuesday.

We also hope to get more information about how the transplant process in progressing. A sample of the donor's blood was supposed to have been sent to Emory this week for preliminary testing. We'll see. She won't be able to know who the donor is or where he is from for one year. Then they will tell both the donor and Charmaine about each other.

I read something I want to share with you in closing:

"When God leads you to the edge of the cliff, trust Him fully and let go. Only 1 of 2 things will happen. Either He'll catch you when you fall, or He'll teach you how to fly!"

Sam

Monday, June 22, 2009

Monday June 22....Home and Happy

Today Charmaine had one of the best days she has had in a while. Her body is recovering from the powerful drugs she is having to take. The heat made her have to stay inside, as it did many other people.

We will go back to the clinic tomorrow at noon for lab test. Then back Friday. She is hoping they will let her have the weekend at home and start again Monday or Tuesday on next reound of chemo.

Right now her white counts are near normal. I am going to try to take her out to dinner one evening. We can go early and not be around a large crowd. Her appetite is slowly getting back to normal.

Thank You all for all the special prayers you have said for her. You can be sure that God hears the prayers of His children.

Found out today that the donor for her transplant is giving a blood sample to be sent to Emory this week for testing. They have chosen the donor. The process is underway for the transplant. All we know is that it is a young male. That's the best choice for a donor.

More tomorrow,



Sam

Sunday, June 21, 2009

Sunday June 21st........Coming Home

During the month of May Charmaine was at Emory Hospital 15 days. So far in June she has been there 17 days. Some how her spirit has remained pretty good. The food there is good but eating the same food everyday starts to get old.

This stay from Wednesday night at the ER to now was unscheduled due to her fever going over 101.5. This morning, providing no temperature spike, she will come home. We will go back to the clinic Tuesday for a lab check then back Friday for another. I am hoping they will let her stay home until next Monday or Tuesday before starting round #5 of chemo and let her rest some. We may have to check back in Friday.

Unless another surprise happens, she should feel quite well this time at home. Her white count was up to 1300 yesterday which means her immune system is not as compromised as it is with low counts. As I have said before, a healthy persons white count is usually 6000 to 10,000. These are the cells in the blood that fight off infections. She did have to have 2 units of blood yesterday as her red count was down.

During her last stay she got 5 transfusions of platelets and 2 units of blood.

It's 6:30 am now. I'm about to leave to go to her. She has stayed by herself the last two nights. I know it's lonely there by herself.

Will keep you all posted on any new developments.

Sam

Update...Charmaine was home today by lunchtime and had a good day visiting with family. She and Dad were exhausted by tonight, and went to bed early. I would like to send a special thank you to her prayer warriors...you know who you are!! :) We are so blessed to have friends like you.

Stefanie

Friday, June 19, 2009

Friday June 19th...Still in Hospital

After the temperature spike and the trip to the ER Wednesday night they kept her here. So we are back on the 6th floor. She will probably be here until late Saturday or Sunday before going home again. We just finished the recovery time so this stay is an unscheduled one due to fever. Her blood counts and platelets just have not consistently recovered this time as they have before. They are mostly looking for a pattern of rising and just have not seen that yet. They say this is very common and may intensify after each round of chemo. Nothing to really be alarmed about.

In the month of May Charmaine was here at Emory 18 days. May be more in June.

Her fever has broken now, but yesterday she was tired and weak from loss of sleep in ER all night before.

I hope she will have a few good days at home before we start round #5 probably next Friday.

The transplant process is underway in that they are narrowing the best of the 2 donors and will contact them for scheduling. Will take some time.

Thanks to all for your continued prayers, care, calls, notes, and acts of kindness.

Thank You Casey for cutting my grass.

Hope you all have a wonderful Father's Day weekend. Be safe.

Sam

Wednesday, June 17, 2009

Wednesday June 17th......10:40 PM Back to EM

Today we went to the clinic and saw the Dr. Her platelets had fell again to 39. On blood thinners anything under 50 gets a transfusion. She had Platelets today. Home about 6PM

Felt good this evening until about 9PM. Started running a fever. It is now 101.7.
This is the most dangerous time for her to run a fever because she is neutropenic. That is when her white counts are very low. This morning they were 300 at the clinic. Can't take any chances. Dr. said come in now.

Stefanie is taking her this time for the 1st time for me.

This is starting to take a toll on me. I can't imagine how Charmaine feels. I'm healthy and she is fragile right now. She's got to be exhausted from sleep loss.
This is the 2nd night this week to the EM. You're there all night when you go.

The last time this happened they gave her 2 antibiotics by iv and we came home. This time I think they may put her back in the hospital for a few days. I think we may have came home a bit too soon with her #'s all so low.

Will update tomorrow on the nights events.

Thank God for my girls for all they are doing right now. Casey feels helpless but just not much a guy can do in this situation.


Sam

Update Thursday June 17th 13:30 am

They did indeed re-admite her to the hospital. She is getting antobiotics by iv. May be there for a couple of days till her counts stabalize.

Will post more about today later.

About to head that way now.

Sam

Tuesday, June 16, 2009

May 16th.......Tuesday.....Coming Home!!!!!!

Great news. Charmaine is getting to come home this evening.

She has to have 2 units of blood which take 2 hrs each and 1 unit of platelets which takes 30 minutes. Has already had the platelets and has started the first unit of blood plasma. I think about 4:30 that will be all done. It will take 45 minutes to 1 hour to get discharged. We should be home by 6 or 6:30. She is so excited.

We come back to the clinic tomorrow am for blood count tests and/or blood/platelets then home for 6 or 7 days of no chemo and feeling good.

I may try to sneak her out to a quiet resturant while she's home. May take her to Sam and Rosco's and get in a quiet corner away from crowds of people.

Thank You all for your prayers about the nose bleed.I know that helped end that problem.

We're both looking so forward to 6 days of "normal" life.

God is always good.

Sam

Monday, June 15, 2009

Monday June 15th...Mid Day Update.........

Charmaine had no more nose bleeds during the night, nor today!!!!!!!!!!!

Today she needs no platelet or blood transfusions.

The Dr. said if her platelet count continues to rise on tomorrow am blood report she may be able to come home tomorrow. It could be Wednesday am. That is still sooner than we thought.

Thank You all for your prayers on the nose bleed issue. I was so very afraid they would sear the inside of her nose.

She is having a very good day today. She has walked 20 laps around the floor here. That equates to a mile!!!

I will update later this evening on the balance of her day.

Sam

10:56 pm pm update.........

Charmaine had a very good day. Hope to go home tomorrow if #'s are good. Has stayed by herself at hospital for two nights. Doing well.

Sunday, June 14, 2009

Sunday June 14th .Prayer Request

Charmaine has felt well both Saturday and today. She has had to have platelets all three days since we have been there trying to stabilize her platelet count. I think she will have both platelet and a blood transfusion tomorrow.

I have a special prayer request for her now. It is 9:15pm on Sunday night.

She has been having a small problem with a nose bleed for the last few days. It has actually bled once but is mostly just like a slight seep. The Dr. came in this evening and said if it bled again that they would have cauterize(burn it inside) to stop the bleeding. This could be a problem for her since she is on blood thinners and has a low platelet count at the same time.

Please pray that her nose will not start bleeding again. A couple of years ago after throat surgery they did that procedure on me with 300 stitches in my throat. It was the most pain I have ever had for two weeks. I don't want her to have to endure that pain.

Will keep you informed on results tomorrow.

Sam

Friday, June 12, 2009

Friday ...June 12th..Back At Emory

We were back at Emory at 8:30 this morning for her 6 days of recovery on blood counts. The check in went smoother than ever. She is in room 607E this time.

Her platelet count was 33 this morning. When they get below 50 she has to have a transfusion. This is because of being on a blood thinner. She is getting one right now. Platelets look like chicken broth in a bag and only take about about 45 min. to 1 hr. for them to go through the iv.

She is feeling very well, perfectly normal mentally. When we got in the room the nurse said the Dr. had ordered her to have a Heparin drip this time instead of the Lovenox (blood thinner shots). That was a real bummer for her because now an iv will be attached for most of the 6 days here. No pain, just very confining. Like having a small rope attached to you for a week. If that's the worst thing that happens this week she'll be just fine.

It's much easier for her to be here this week of recovery since the Dr. explained to her why on our last visit with him. He said when on blood thinner and your platelet count drops very low (which is normal because of the chemo) it is very easy to have a hemorrhage. He said he wasn't worried about an internal hemorrhage or a cut. Said he could give her a transfusion for that and solve the problem. What he's worried about is a hemorrhage inside her brain which could put her in a wheelchair for the rest of her life. That information did create some extra motivation to be here this week.

Natalie is coming to stay with her tonite. I'll keep you all updated.

Sam

Thursday, June 11, 2009

Thursday June 11th ...Update



Charmaine had a very good day today, almost normal feeling except for some light headedness. This is probably from her #'s starting to fall. We will check in at 8:30 am at Emory tomorrow for 6 days of recovery time. During this time she will get platelet transfusions and probably some blood also to build her counts back to normal. We will come home next Wednesday late or Thursday early if no surprises happen. Then 6 days at home. The best 6 days of the month for her. She will not be getting any chemo this trip.

I have been wanting to tell you some of the things we learned last week on the 8th floor(transplant floor).

Did you know that when she gets the transplant and the new marrow grafts into her bones she will assume the blood type of the donor!!!!!!!!!! She has A+ blood. If the donor has A- one day, all of a sudden, she will have that type blood. Each time they give her a transfusion after the transplant they will type her blood to see if a change has occured. Isn't that amazing.

Also, 70% of the people that get a transplant have to have an outside donor. Even if you had siblings to donate it only 25% chance they would match. A young male is the best donor.

Also, we learned that 90% of the time they do a stem cell transplant instead of a marrow transplant. They say it is easier on the donor(they get it from their blood not the marrow) and the receiver has an easier time grafting it. We are not sure which she will get. The Dr. said we would talk about that later.

They have narrowed the donors for her down to to 2 people. They will start testing for the best. The process is under way for the transplant.

Thank You all for the very special phone calls. You'll never know how much they mean to me. Especially to you Russ.

Thank you to our close friends for your support and understanding even when she doesn't feel like vistors. You mean more to me than you'll ever know.

Thank you Ramona and Renee for coming and cleaning our house while we were at the hospital.

Thank you Anthony and Alecia for all you do and for being our friends.

Thank you to the ones who have brought food to us when we come home.

I am overwhelmed by all the care, love, and support we have received.

Sam

Wednesday, June 10, 2009

Wednesday May 10th..Update

We went to the clinic this morning as scheduled. Her blood counts all came back acceptable enough for the Dr. to allow her to stay home until Friday. We will check back in at 8:30 Friday for 6 days of recovery to allow her platelet count to normalize. The blood thinner she has to take (Lovenox) is the reason for this. She has to take this because of the blood clot on her lung and to prevent another clot from forming. It, combined with her platelet level dropping, puts her in extreme risk for a hemorrhage internally, especially the brain. For this reason we go back each time after the chemo for recovery.

We will get out Wednesday pm or Thursday am from this stay. No chemo this time just platelets and blood transfusions as needed. This is not painful. Each day she'll want to come home because she'll feel good. Should not have an side effects on this week.

She has had a good day and is feeling better each day. The next two weeks, until the next regiment starts, will be her best days especially from next mid week to chemo.

We stopped at Charmaine's Salon today on the way home for her to visit her dear friends there. That was indeed a treat for her.

The Dr. today was her main Dr. and did confirm that she was in remission. The bone marrow search has been narrowed down to 2 donors. They will do some tests and determine which one is the best. The process is underway to get the transplant going.

Until it happens we will remain on the chemo regiments and generally on the same schedule we have been on. No letting up now. They said if we slowed or stopped the treatments it would come back in full force and all this work would have been lost.
We will stay the course.

Will keep you all as informed as I can each day.

Thanks to each one of you for caring enough about her to read this update daily.

Sam

Tuesday, June 9, 2009

Tuesday June 9th

At about 10 last night her fever spiked to 101.9 so we left for Emory EM. She was given antibiotics in the iv. One bag takes 1 hr to dispense, the other takes 30 minutes. The nurse forgot to turn the 1st one on and didn't notice it for an hour. That cost us an extra hour there. When you've been up for 20 hours you start losing some of your focus and definitely your sense of humor. This got the fever under under control and we got back home at 4:15.

There was a screamer in the room next to us so we got hear his obscene yelling for 4 hrs. I was hoping they would give him an adivan to calm him but it never happened. He weighed over 500 lbs. Was pitiful.

She slept until 9:30 this morning and is feeling weak but ok. Today will be a sleep/resting day for her.

Her counts on red blood cells, white cells, and platelets will start to drop now and will bottom out Friday. We will check back in Friday for 6 days for recovery on the counts.

We go to the clinic Wednesday for lab work and Dr. visit.

Monday, June 8, 2009

Monday June 8th.....8:40 PM

Had a good day today a bit weak but good.

About 5PM her temp started rising. It was 100.3. We called the clinic and spoke with the nurse. The protocol is always the same. If her temp ever gets to 101.5 we go to the EM at Emory. Right now it is 101. She is sleeping.

This always scares me. I check it about every thirty minutes. Got all the bags packed and ready to go.

As I have said before, when she's there I miss her. When shes home I'm scared. Her condition can change in minutes. She is not allowed to take anything for fever like Tylenol etc. It would mask any other infection. That's the problem. She can't take anything here to reduce the fever.

Will keep you updated on the outcome of tonite.

Sam

10pm update...Dad went ahead and took Charmaine back to Emory to check on her fever. It went up to 101.7 so they wanted her to come back to make sure nothing else is wrong. Hopefully they will check her out, the fever will come down, and she can go back home...we will update tomorrow

Stefanie

Sunday, June 7, 2009

Sunday June 7th..............AT HOME AGAIN

This morning promptly at 8am, the PA, Jessica came in to do her final spinal tap with chemo. All went very well. No pain and no side effects. She had Adivan in the iv port before it this time and it works very fast that way. She slept for about 3 hrs after it was over. The longer she lays flat the less the chance for a headache from it.

We were released and home by lunch. This afternoon she napped most of the time from the meds. She is now alert and starting to recover. Has snacked on the chicken and dumplings and strawberry cake Alecia brought for her. Thank You Alecia.

So very glad to have her home with me again. My heart is starting to rise back to my chest again. When shes gone it feels like it is my stomach. I miss her so very bad. One of the side effects of this chemo round is the voice. She sounds like a little girl talking. It almost makes me cry to her her tender little voice. She is always so very grateful for every thing I do for her. She will never know what a privilege it is for me to help her through this.

We go back Wednesday to the clinic for tests, then back Friday probably for 5 to 6 days in hospital for recovery time.

Still rejoicing about the PCR test results coming back negative.

More later...................

Sam

Saturday, June 6, 2009

Saturday...June 6th..Chemo is over for round 4

Had a pretty good day today. Starting to recover from treatment. Had to have 2 units of blood this afternoon. That's good so we won't have to worry about her levels falling so low while at home.

At 8 am in the morning she gets another spinal tap with chemo then we come home. Hope to have her home by lunch.

Hope you all have a wonderful weekend.


Sam

Friday, June 5, 2009

Friday June 5th..GREAT NEWS!!!!

This afternoon we were told that the results of her PCR test came back negative in all areas.

Let me explain what that news means.

Bottom line it means that her cells are substantially cancer free. In remission. The chemo has worked and she is almost ready for the marrow/stem cell transplant.

This test is done by taking a blood sample. It will detect one leukemic cell among 500,000 to 1,000,000 non leukemic cells. It is very accurate. The Dr. said this was the best news we could hope for.

This is very good news today.

I have prayed that God would spare her from going through all 8 regiments of the chemo. This puts her closer to the transplant.

They have started the donor search now so the process is under way.

When they find the donor the calendar will be set and she will have to go through what is called "conditioning" to get ready to receive the outside marrow. When this happens her immune system will be completely wiped out. When that happens it is called "Day Zero". This is too much to post you on now. The good news is we are nearly ready to start!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! This will not happen fast. It will take time to coordinate all that has to happen.

She is much better now. I think she will start to recover fast from the chemo.

Natalie is with her tonite.

More later.

We are so excited.

Sam

I edited this post after getting more info from the doctor in case you read it and noticed some changes. I believe it is all accurate now.

Friday June 5th....2:15 PM Update...5:15PM Update

Charmaine had a difficult night up and down with severe nausea and diarrhea. Stefanie was with her.

This morning that has continued. She is very weak and tired. The adivan and nausea meds make sleep most of the time. The very slightest movement makes her sick.

During this time she obviously can not eat. It is also hard for her to take oral meds because she will throw most of them back up.

Hopefully the worst is passed on this round.

It hurts my heart to see her be so very sick. It's a helpless feeling.

I'll update post later today.


5:15 Update.............

Doing much better gradually. Is starting to snack on crackers and drink gatorade and is more alert.Maybe the worst is over for this round.

The chemo that she just finished is called Methotrexate. It seems to have the worst effect of all of them. The one she starts now is Cytarabine. On this one she has to put special drops in her eyes to prevent the collection of crystals on her eyes. Also, she cannot wear contacts during this one.

Chemo treatments end in the morning except for the spinal tap at 8am on Sunday. Then home for few days.

We completely loose all sense of time here. It's hard for me sometimes to even remember what day it is.

Thanks for caring about her enough to read this every day,

Sam

Thursday, June 4, 2009

Thursday ...June 4th....

Today is called day 2 of this regiment. On day 2 and day 4 or 5 she gets the lumbar puncture. Today about 2 a new PA , Jessica, did the procedure. Thanks for praying about this. No nerve was hit today and it went well. Watching this unnerves me every time. Just the thought of a 3" needle being stuck in your spine makes my stomach knot up, let alone watching it be done to her. She has to have adivan before getting it so she sleeps for 3 or 4 hrs after its over. She is required to lay flat for about an hour to prevent getting a headache and to let the puncture seal good.

The chemo is going really good so far. She has not had any nausea or diarrhea or headaches. Hopefully, she will do well the rest of the week.

The Dr. said if all goes well and her #'s look good she will get the 2nd puncture on Sunday am then we come home for few days. We will probably come back a week from Friday for 5 days to start the recovery process.

Stefanie stayed with her last night and will again tonite.

The nurses on the 8th floor are no less than amazing. I'm so thankful we were put here. Getting to know them will help build confidence for the transplant.

One of her nurses, Marie, has been here doing transplants for 30 years. Started here right out of nurses school.

Thanks for praying for her. God has given mercy on the severity of the side effects.
He hears our prayers.

Sam

8:56pm........Update I am home now. Stefanie let me know about 1 hr ago that she was very sick throwing up really bad. I had not written the blog above over 1 hour when she got sick. As I have said many times before, her condition can turn in a moment without notice.

She has been given more adivan to make her rest and settle down.

We are not in just a physical battle here. It is a spiritual one too. I do not believe that satan will tolerate us giving praises to God without trying to dampen or discourage us. Remember the story about Job in the Bible. No matter what satan did to him he said "Blessed be the name of the Lord"..... So shall we.

Stefanie just text me and said she was throwing up again, even as I type this note, so very sick at her stomach. I still say, and so would she, "Blessed be the name of the Lord" and Thank You Lord for all the blessings you've given us.

Pray for her

Sam

Wednesday, June 3, 2009

Wednesday June 3rd........Back at Emory..Round# 4

We arrived here at 8am. At Emory you can call in and pre-register for admission. It is called fast track registering. When we pull in she goes to the lab for blood work and I go to admissions. Usually I have her belongings in the room all set up before she finishes at the lab. This speeds the process up. The faster they can start the chemo, the faster we come home. If you don't know the process you can easily waste one day.

All settled in now and the 1st type chemo has started. As I have said before the chemo goes in the iv just as any fluids are given in an iv. Some are clear and some are colored, red or green. Some small bags go in 30 minutes some are for 24 to 36 hrs. Lots of pre-meds are given before it starts to prevent or minimize the side effects.

She still has some stomach pains but not severe. Right now she is making laps around the floor getting in all the exercise she can. She just pushes the iv cart with her when she walks.

This time here we are in room 821E. This is the bone marrow transplant floor. The nurse we have has been here 30 years doing nothing but bone marrow transplants. She has been an unbelievable encouragement to Charmaine telling her all about what happens. She has been able to take some of the fears away telling her 1st hand what goes on and what to expect. I think it was a God send that we were put here. We are adjacent to the helicopter landing pad. It is 2 stories higher than us, maybe 40 yards away from the window. It's really interesting to watch them. The noise is not very offensive.

She is the best spirits I have seen her when starting a round.

There 2 patients on this floor that have the flu, so extra precautions are in effect. We can't go to the kitchen and must wear masks when out of the room. No one had to tell us to wear a mask. That's all we need is for one or both of us to get the flu.

Please pray that we, or our girls, do not catch the flu while here this week.

I am sorry if any of you call either her or me and I do not return your call. Sometimes I just forget. Please forgive me if that happens. Sometimes she just can't talk. Huffy I am sorry I did not call you back yesterday. I just forgot.

Will keep you posted.


Sam

Tuesday, June 2, 2009

Tuesday June 2nd

Sorry so late updating today. I guess I forgot.

She had a good day today except for the nagging tummy ache. We think it is from the new med they gave her to stop a possible bacterial infection in her intestines the drug is Flagyl. We are not sure but think that's it.

I will be up at 5:30 am to get all going to go back to Emory. We check in at 8 am. I will keep you posted on the progress. This is round #4 of the chemo. They call it 2B.

I have a spcfic prayer request for her on this round. The last time she got her lumbar puncture which is a spinal tap where they put chemo in her spinal fluid , the PA had a hard time finding the right spot between her vertabrae. When it finally went in, it hit a nerve amd shot pain all the way to her toes on the left leg and foot.

Please pray that the spinal taps will all go well and not hit any nerves. She gets 2 of these on each visit for chemo.

My heart is starting to fall down to my stomach again anticipating her having to go again for this. This week it has been in my chest. When she is there it feels like it is in my stomach. I am sure some of you have had that feeling sometime or other.

I'll keep you posted each day.

Sam

Monday, June 1, 2009

Monday June 1st

Yesterday I mentioned that Charmaine had some problems with her stomach after we got back from the outing with the SS class.

All day yesterday she had pains in her stomach that felt like pouring alcohol on an open wound. I think it may feel like ulcers and very well may be just that.

One of the side effects of the chemo is to have ulcer like sores in the mouth and sometimes throughout the entire digestive system. She has been very fortunate not to have had them to this point. We are going to call the clinic this morning and ask the Dr. some questions.

Please pray that she does not get these tormenting sores in her body. They are very painful. If you've ever had an ulcer in your mouth or stomach you can imagine being coated with them.

As I have said numerous times before, it is simple amazing how fast new issues appear from time to time. Everyday is unpredictable to some degree.

It was good to have gotten to see that sparkle in her eye and her smile for a while.

Everyday we are one day closer to her being healed from this terrible disease.

I can't tell you all how nice it has been to have her home with me. Even if I'm just washing the car and she's on the porch watching me I feel complete.

I'll update this note late today after we talk to the Dr.

We are to check in Wednesday at Emory for next round.


Sam


9:35 pm She had an absolutely wonderful day. All pains went away. Had vistors and spent the end of the day with best friends and watching her grandchildren play in our yard. Was sitting in the grass watching them. PTL!!!!!