Today was a day of great anticipation for us. We went to the clinic to get the results of her FISH and PCR test which would reveal if any leukemia cells are present in her body.
When we went in the PA told us she tested negative in all aspects!!!!!!!!!!!!!!!!!!!!!!!!!
That's the best news we could have gotten.
The Dr. took her off all the steroids today and started her back on Sprycell which is the chemo in pill form to prevent the leukemia from reforming. She will take this for the rest of her life he said. Without it there is a 50/50 chance of leukemia coming back.
The steroids having been giving her all the energy she has had. Without them the doc said she would start to feel fatigue which is a normal side effect of the transplant for a long while. We are hoping she will not have it severely.
He also said that the pic lines would come out in about three weeks. She has three lines going into her chest now that have to be flushed with heparin everyday. They have a clear bandage over them with a bio patch to prevent infection. It is a real pain to take a shower and not wet them. This will make her life much easier without them.
We only go back now every 2 weeks. She is still doing much better than the others that went through this with her.
When you see no new post on the blog, you may assume that she is doing well. I will post you for the next few days as she starts on the Sprycell and is steroid free on her progress.
Thanks again to you all for caring so much and for all the prayers and kind deeds you have done for us.
God had been so very merciful to us. To Him be all thanks and praise.
Sam
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Hallelujah!!!!!!!!!!!!!!!!!!!!! God's miraculous power still blows me away ... Glory! Glory! Glory!
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