Hello everyone, I wanted to report a wonderful week to you. And not going to clinic today, WOW. I feel lost. I have been there for the last 8 months or in the hospital. It is so nice to feel free for awile.
Good news also the dogs have a new home. The folks that got them have 4 children, and when they picked them up yesterday, the kids were so excited. So another answered prayer.
I need you to pray for Erin and Camille. They are my co-transplant friends that are having a rough time. Ann also was with us in transplant but is doing great.
I want to go and do more than the Dr. will allow and it's cramping my style just a bit. Since I can't I just cook and our grocery bill is rising. It's fun and my kids truly love mama in the kitchen again.
Thanks again to everyone who follows the blog, prays for me, sends cards and always offers words of encouragement to our family. I love you all so very much. Continue to pray for next visit with Dr as we will get critical information on how my donors blood is taking over my body, and make sure no leukemia cells are hiding.
Charmaine
Friday, October 30, 2009
Saturday, October 24, 2009
Saturday October 24th.......
We went to Emory clinic yesterday for lab work and routine Dr. visit. All of her blood counts continue to be in the normal range and her platelet count is rising. All seems good.
She is feeling fantastic with normal energy and appetite.
We now only have to go every two weeks.
Our next visit , we will get some critical news. They did a pcr and a fish test this time. These will reveal if she has any leukemia cells still in her and also show how the new cells are developing in her body. We are in high anticipation of this news.
Her face is still quite swollen from the steroids but they have been cut down even more now.
To our friends who went through the transplant at the same time, we think of each of you everyday. A reunion would be nice after you all recover.
Thanks for caring about her enough to continue reading this blog.
Sam
(By the way the dogs still need a home I got them back!!!).
She is feeling fantastic with normal energy and appetite.
We now only have to go every two weeks.
Our next visit , we will get some critical news. They did a pcr and a fish test this time. These will reveal if she has any leukemia cells still in her and also show how the new cells are developing in her body. We are in high anticipation of this news.
Her face is still quite swollen from the steroids but they have been cut down even more now.
To our friends who went through the transplant at the same time, we think of each of you everyday. A reunion would be nice after you all recover.
Thanks for caring about her enough to continue reading this blog.
Sam
(By the way the dogs still need a home I got them back!!!).
Monday, October 19, 2009
Monday October 19th......Need Your Help
First of all Charmaine is doing ok. Fatigue has set in on her today. Not sure if it is because of the reduction in steroids or just an off day. We have been expecting some fatigue.
I need your help. I have 2 wonderful lab puppies 8 months old. Both females one yellow, one black( clara bell and raven). I need to find a good home for them. It is too risky to have them with Charmaine's immune system so low. Bacteria or a scratch could be serious.
I think they are full blooded but I have no papers. I do not want any money for them just a good home. They are sisters and have never been apart. I want them to stay together.
They are totally safe with babies and small children. Nats little boy Reece drags them by the ears. They are very playful. I keep them out in a pen but let them out daily to play. The country would be better for them.
Let me know if you have any prospects.
I have put them on craigs list so hurry.
Sam.....................678-409-6325
I need your help. I have 2 wonderful lab puppies 8 months old. Both females one yellow, one black( clara bell and raven). I need to find a good home for them. It is too risky to have them with Charmaine's immune system so low. Bacteria or a scratch could be serious.
I think they are full blooded but I have no papers. I do not want any money for them just a good home. They are sisters and have never been apart. I want them to stay together.
They are totally safe with babies and small children. Nats little boy Reece drags them by the ears. They are very playful. I keep them out in a pen but let them out daily to play. The country would be better for them.
Let me know if you have any prospects.
I have put them on craigs list so hurry.
Sam.....................678-409-6325
Saturday, October 17, 2009
Saturday October 17th
Well guys this post has been long time coming. IT'S ME CHARMAINE. I MADE IT TO THE OTHER SIDE OF TRANSPLANT AND I PRAISE THE LORD. I wanted to post myself before now but just didn't have the brain power. I think I'm clear minded enough now.
I want to thank so many PRAYER WARRIORS for following the blog and lifting me up to OUR LORD AND SAVIOR during these last 8 months. There were times when I was so sick I couldn't even pray, just the name of Jesus would come out of my mouth. But I knew he knew what I needed and also the HOLY SPIRIT reminded me of all my family and friends who had my back in prayer. SO AGAIN THANK YOU!!!!!!!!!!!!!!!!!!!!
Then we come to the cleaning and dusting of my house several times by family and church members. THANK YOU. And what about all the food so many of you brought and gift certificates to Red Lobster. How sweet was all this!!!!!!
Cards and letters to lift our spirits and words from your heart to mine that I will never forget.
God bless you for taking your time to do so. Your cards would come just at a moment I needed to read what was in the card. That's God's timing not ours.
I was able to share my testimony so many times at the hospital with the nurses and other patients. That is what this journey was all about. I know it isn't over yet and I have a long way to go but I've got the fight left in me to finish it.
And what about my husband and children!!!!!!!!!! Wow talking about a family pulling a load. They jumped in head first and got organized with a schedule to help me. We had lots of funny moments at the hospital, Stefanie might disagree with that. I think she caught the worst of everything. If I acted crazy it was always with her, seeing things that weren't there, and going places I didn't go, oh yes I put her through it. She would just laugh it off and keep going for another 24 hours without sleep. Natalie would stay on Tuesday and Friday night and most of the time seems like I would act pretty good. God knew she needed a good night sleep with the 3 kids she has someone might just be up at any time. We had a chance to spend some quality time together though and for that i'm thankful. Deana stayed some with me also but most of the time anyone who knows Deana knows she was shuffling kids for Natalie and Stefanie. What a blessing from God she is and has been to me since the day she was born. Then we have KC, guys can't stay at the hospital much but he did visit, but mothers and their sons have a special bond, he could not stand to see me in pain or sick. But let me tell about KC, not a day went by that he wasn't praying and crying out to God to make his mama well. Many messages came from him saying, Mom I have been on my knees on my back porch asking God to take it from you and give it me. Wow that's powerful.
And Sam I couldn't imagine going through this without him. He was doing whatever it took to make me feel safe and secure. The stress this put on him has broken my heart. But hopefully we are getting back to normal. I love him more than life and appreciate him more than ever. You really begin to see how important family is when your faced with what our family was faced with.
I am doing great, my first 100 days will be up in Dec and I will get a little more freedom. I feel so good that I forget I'm sick. Sam quickly reminds I can't be around crowds and gets me in check.
The flu season is here and my Dr. worries for me. So I must be very careful.
I will post again and I love all you guys!!! Charmaine
I want to thank so many PRAYER WARRIORS for following the blog and lifting me up to OUR LORD AND SAVIOR during these last 8 months. There were times when I was so sick I couldn't even pray, just the name of Jesus would come out of my mouth. But I knew he knew what I needed and also the HOLY SPIRIT reminded me of all my family and friends who had my back in prayer. SO AGAIN THANK YOU!!!!!!!!!!!!!!!!!!!!
Then we come to the cleaning and dusting of my house several times by family and church members. THANK YOU. And what about all the food so many of you brought and gift certificates to Red Lobster. How sweet was all this!!!!!!
Cards and letters to lift our spirits and words from your heart to mine that I will never forget.
God bless you for taking your time to do so. Your cards would come just at a moment I needed to read what was in the card. That's God's timing not ours.
I was able to share my testimony so many times at the hospital with the nurses and other patients. That is what this journey was all about. I know it isn't over yet and I have a long way to go but I've got the fight left in me to finish it.
And what about my husband and children!!!!!!!!!! Wow talking about a family pulling a load. They jumped in head first and got organized with a schedule to help me. We had lots of funny moments at the hospital, Stefanie might disagree with that. I think she caught the worst of everything. If I acted crazy it was always with her, seeing things that weren't there, and going places I didn't go, oh yes I put her through it. She would just laugh it off and keep going for another 24 hours without sleep. Natalie would stay on Tuesday and Friday night and most of the time seems like I would act pretty good. God knew she needed a good night sleep with the 3 kids she has someone might just be up at any time. We had a chance to spend some quality time together though and for that i'm thankful. Deana stayed some with me also but most of the time anyone who knows Deana knows she was shuffling kids for Natalie and Stefanie. What a blessing from God she is and has been to me since the day she was born. Then we have KC, guys can't stay at the hospital much but he did visit, but mothers and their sons have a special bond, he could not stand to see me in pain or sick. But let me tell about KC, not a day went by that he wasn't praying and crying out to God to make his mama well. Many messages came from him saying, Mom I have been on my knees on my back porch asking God to take it from you and give it me. Wow that's powerful.
And Sam I couldn't imagine going through this without him. He was doing whatever it took to make me feel safe and secure. The stress this put on him has broken my heart. But hopefully we are getting back to normal. I love him more than life and appreciate him more than ever. You really begin to see how important family is when your faced with what our family was faced with.
I am doing great, my first 100 days will be up in Dec and I will get a little more freedom. I feel so good that I forget I'm sick. Sam quickly reminds I can't be around crowds and gets me in check.
The flu season is here and my Dr. worries for me. So I must be very careful.
I will post again and I love all you guys!!! Charmaine
Wednesday, October 14, 2009
Wednesday October 14th
Charmaine continues to be doing very well. Her hair is not sprouting back yet. The chemo and radiation on the last treatment will take longer to get out of her system. The Dr. said about December. Maybe she'll be singing "All I want for Christmas is a full head of hair".
The steroids have made her face swell a bit. I tease her about looking like a chip monk. This will pass as the steroids are slowly phased out.
We go back Friday for check up. I will post you on the results.
Sam
The steroids have made her face swell a bit. I tease her about looking like a chip monk. This will pass as the steroids are slowly phased out.
We go back Friday for check up. I will post you on the results.
Sam
Saturday, October 10, 2009
Saturday October 10th
Yesterday we went to the clinic for lab work and Dr. visit. Her blood counts are still remaining in an acceptable range except for her platelets which were a bit low. The Dr. said this was normal and they should rebound. He is continuing to drop the steroids every week weening her off them. They make her jittery and a bit anxious.
Charmaine is still doing remarkably well. We saw some of the other patients there at the clinic and none are doing nearly as well as she is. About the only problem she has is an occasional leg cramp usually at night.
Thanks for caring and praying for her.
Sam
Charmaine is still doing remarkably well. We saw some of the other patients there at the clinic and none are doing nearly as well as she is. About the only problem she has is an occasional leg cramp usually at night.
Thanks for caring and praying for her.
Sam
Thursday, October 8, 2009
Thursday October 8th
Charmaine continues to be doing very well. Almost on a normal routine except for still having to keep her distance from everyone for a while longer.
We had our first official date out to eat Tuesday night. Went early to Sam and Roscoe's and got in the corner. She was thrilled.
We go back to the clinic tomorrow for normal lab work and Dr. visit. We only have to go once a week now.
Please continue to pray that the graft verses host disease will pass her by.
Thanks for caring and for all that many of you have done for us.
Sam
We had our first official date out to eat Tuesday night. Went early to Sam and Roscoe's and got in the corner. She was thrilled.
We go back to the clinic tomorrow for normal lab work and Dr. visit. We only have to go once a week now.
Please continue to pray that the graft verses host disease will pass her by.
Thanks for caring and for all that many of you have done for us.
Sam
Monday, October 5, 2009
Monday October 5th......Update
Charmaine continues to be doing exceptionally well. This weekend she got to see all the kids and most of the grandchildren. She still has to keep a distance with little or no touching just as a precaution.
She has developed some pain in her knee joints and some leg cramps. We think it is just muscle atrophy from lack of use for so long.
She is doing all of her house work now and cooking.
Her hair is taking longer to start coming back this time due to the powerful chemo and radiation. We hope it starts this week.
When her hair is starting back she looks like Woodstock on Charlie Brown with little stubs. She will be mostly gray for a long time because she can't get any color for about a year.
It is so nice to have her home and for life to feel normal again.
Thanks for your continued prayers.
Sam
She has developed some pain in her knee joints and some leg cramps. We think it is just muscle atrophy from lack of use for so long.
She is doing all of her house work now and cooking.
Her hair is taking longer to start coming back this time due to the powerful chemo and radiation. We hope it starts this week.
When her hair is starting back she looks like Woodstock on Charlie Brown with little stubs. She will be mostly gray for a long time because she can't get any color for about a year.
It is so nice to have her home and for life to feel normal again.
Thanks for your continued prayers.
Sam
Thursday, October 1, 2009
October 1st.............DOING FANTASTIC!!!!!!!!
CHARMAINE IS DOING UNBELIEVABLE. She has near normal energy, normal appetitie, and has little to no side effects from the transplant. It is nothing short of a miracle.
We go to clinic tomorrow for lab work and Dr. visit at 2pm. Down to one a week now.
She is able to get up at 7am and stay up till 11pm now with very little rest.
Even the nurses and Drs. call her the miracle girl!!!!!!!!!!!!!
God does hear our prayers. To Him be all the glory for what He has done for her.
Sam
We go to clinic tomorrow for lab work and Dr. visit at 2pm. Down to one a week now.
She is able to get up at 7am and stay up till 11pm now with very little rest.
Even the nurses and Drs. call her the miracle girl!!!!!!!!!!!!!
God does hear our prayers. To Him be all the glory for what He has done for her.
Sam
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