I haven't posted in a while so I just wanted to update you on a few things.
I am doing pretty good, really having to stay inside because of heat and GVHD of skin and eyes. I am still having issues related to radiation and chemo. Hopefully when I come off immune suppressants I will see a big turnaround. Can't wait for that.
My immune system is almost non existant so therefore I go to clinic once a month for next year for infusion called IVIG and respiratory therapy to keep me from getting fungus in my lungs and hopefully the IVIG will jump start my immune system.
Fatigue is a huge factor in this journey but I can handle that if just not in pain or sick.
God has been so good to me and my family. Thanks for your continued support my friends.
Charmaine
Friday, July 30, 2010
Wednesday, July 7, 2010
JULY 7, 2010..................... UPDATE
It has been a while since I have updated the blog. As I said before, if all is going well I will not update it everyday.
Charmaine is generally doing well 9 months post transplant now. She is still having lots of irritating issues healing from the radiation and chemo. The Dr. said her body won't heal until she can come off of the immune suppressant drugs. We hope to start reducing them on the next visit on the 23rd of July.
We just got back from a week in Florida with all of the kids and grandchildren. She was not able to go out in the sun any but did enjoy having all there. Spent a lot of time on the balcony looking at them at the pool with binoculars.
She is still taking a brigade of drugs and will be for a long while.
Some days she feels pretty normal. Some days she is still very tired but not as bad as earlier.
Thanks again to you all for your support during this very long journey.
By the way, somehow we are getting lots of unknown and unwelcome comments on the blog. Some in a foreign language are porn. DO NOT OPEN THEM. I fear some may be dangerous.
Sam
Charmaine is generally doing well 9 months post transplant now. She is still having lots of irritating issues healing from the radiation and chemo. The Dr. said her body won't heal until she can come off of the immune suppressant drugs. We hope to start reducing them on the next visit on the 23rd of July.
We just got back from a week in Florida with all of the kids and grandchildren. She was not able to go out in the sun any but did enjoy having all there. Spent a lot of time on the balcony looking at them at the pool with binoculars.
She is still taking a brigade of drugs and will be for a long while.
Some days she feels pretty normal. Some days she is still very tired but not as bad as earlier.
Thanks again to you all for your support during this very long journey.
By the way, somehow we are getting lots of unknown and unwelcome comments on the blog. Some in a foreign language are porn. DO NOT OPEN THEM. I fear some may be dangerous.
Sam
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