I haven't posted in a while so I just wanted to update you on a few things.
I am doing pretty good, really having to stay inside because of heat and GVHD of skin and eyes. I am still having issues related to radiation and chemo. Hopefully when I come off immune suppressants I will see a big turnaround. Can't wait for that.
My immune system is almost non existant so therefore I go to clinic once a month for next year for infusion called IVIG and respiratory therapy to keep me from getting fungus in my lungs and hopefully the IVIG will jump start my immune system.
Fatigue is a huge factor in this journey but I can handle that if just not in pain or sick.
God has been so good to me and my family. Thanks for your continued support my friends.
Charmaine
Friday, July 30, 2010
Wednesday, July 7, 2010
JULY 7, 2010..................... UPDATE
It has been a while since I have updated the blog. As I said before, if all is going well I will not update it everyday.
Charmaine is generally doing well 9 months post transplant now. She is still having lots of irritating issues healing from the radiation and chemo. The Dr. said her body won't heal until she can come off of the immune suppressant drugs. We hope to start reducing them on the next visit on the 23rd of July.
We just got back from a week in Florida with all of the kids and grandchildren. She was not able to go out in the sun any but did enjoy having all there. Spent a lot of time on the balcony looking at them at the pool with binoculars.
She is still taking a brigade of drugs and will be for a long while.
Some days she feels pretty normal. Some days she is still very tired but not as bad as earlier.
Thanks again to you all for your support during this very long journey.
By the way, somehow we are getting lots of unknown and unwelcome comments on the blog. Some in a foreign language are porn. DO NOT OPEN THEM. I fear some may be dangerous.
Sam
Charmaine is generally doing well 9 months post transplant now. She is still having lots of irritating issues healing from the radiation and chemo. The Dr. said her body won't heal until she can come off of the immune suppressant drugs. We hope to start reducing them on the next visit on the 23rd of July.
We just got back from a week in Florida with all of the kids and grandchildren. She was not able to go out in the sun any but did enjoy having all there. Spent a lot of time on the balcony looking at them at the pool with binoculars.
She is still taking a brigade of drugs and will be for a long while.
Some days she feels pretty normal. Some days she is still very tired but not as bad as earlier.
Thanks again to you all for your support during this very long journey.
By the way, somehow we are getting lots of unknown and unwelcome comments on the blog. Some in a foreign language are porn. DO NOT OPEN THEM. I fear some may be dangerous.
Sam
Tuesday, May 18, 2010
Charmaine Home at 7 pm May 18th
Charmaine is home now, resting well. Very tired and sleepy after the hospital stay.
Has bad sinus infection and common cold. Treating with tons of antibiotics.
Will go back to Emory Friday for check up.
Thanks for you thoughts and prayers.
Sam
Has bad sinus infection and common cold. Treating with tons of antibiotics.
Will go back to Emory Friday for check up.
Thanks for you thoughts and prayers.
Sam
May 18th.............Update
Still at Emory as of 4pm hoping to come home this evening. The lungs are free of pneumonia but she has has a bad sinus infection that can be treated with antibiotics.
She is very sleepy due to not having her normal rest time and loss of sleep last night.
Is feeling much better today.
Sam
She is very sleepy due to not having her normal rest time and loss of sleep last night.
Is feeling much better today.
Sam
Monday, May 17, 2010
May 17th.........Back in Emory Hospital
Charmaine was admitted back in Emory today.
She has had numerous issues for the past month but got a bad cold last week that worsened. She was having trouble breathing and coughing really bad so the Dr. wanted her in to do what he called a 10,000 mile check up.
They are concerned about pneumonia and a fungal infection in her sinus. They will also be checking her blood for any other infections.
I am so very relieved that she is there to get checked.
I will keep you all posted on her progress in the next few days.
She is an amazing trooper in this journey. Always worried about putting someone else out!!
Sam
She has had numerous issues for the past month but got a bad cold last week that worsened. She was having trouble breathing and coughing really bad so the Dr. wanted her in to do what he called a 10,000 mile check up.
They are concerned about pneumonia and a fungal infection in her sinus. They will also be checking her blood for any other infections.
I am so very relieved that she is there to get checked.
I will keep you all posted on her progress in the next few days.
She is an amazing trooper in this journey. Always worried about putting someone else out!!
Sam
Friday, April 23, 2010
Friday April 23, 2010
We have just returned from Emory Clinic and had a good report on blood counts. However, do you remember in the last post I talked about GVHD. Ok it caught me. I have severe case in my left eye, and mild in right eye. Stefanie took me to cornea specialist yesterday and we have lots of meds. Damage has been done but Dr. Hayes thinks he can repair it with proper meds.
Dr. Khoury also ran PCR/FISH test today. This will tell if any leukemia cells have come back in blood and marrow. Pray that I will be clear.
My iron level was tested again today also. The results will come in next week on all of these. I will post and let you know how things are going.
Thank you from the bottom of my heart for following my blog and praying for me.
So many of you have been so amazing with your cards, phone calls and emails. Friends are so special and you really realize it in times like these.
God is so good and I want everyone to share in the joy that he provides for us if we will just accept His Son, Jesus Christ as our personal Savior. Yep just that easy. The walk of life may not always be easy but you will never be alone. That is a wonderful truth, and oh so comforting.
I have to be limited where I go, therefore have not been able to return to my church. I was able to attend for 3 Sundays then I got sick. That took care of those trips. But I long to return to worship with my friends.
I will write again soon
Charmaine
Dr. Khoury also ran PCR/FISH test today. This will tell if any leukemia cells have come back in blood and marrow. Pray that I will be clear.
My iron level was tested again today also. The results will come in next week on all of these. I will post and let you know how things are going.
Thank you from the bottom of my heart for following my blog and praying for me.
So many of you have been so amazing with your cards, phone calls and emails. Friends are so special and you really realize it in times like these.
God is so good and I want everyone to share in the joy that he provides for us if we will just accept His Son, Jesus Christ as our personal Savior. Yep just that easy. The walk of life may not always be easy but you will never be alone. That is a wonderful truth, and oh so comforting.
I have to be limited where I go, therefore have not been able to return to my church. I was able to attend for 3 Sundays then I got sick. That took care of those trips. But I long to return to worship with my friends.
I will write again soon
Charmaine
Tuesday, April 20, 2010
Tuesday April 20th
We haven't posted in awhile, but everything is going great! I am posting for myself today which is unusual, but I justed wanted to let everyone know how much I have appreciated the prayers and support for me and my family.
Can you believe it has been a year since I entered Emory Hospital and started treatment for this dreaded disease. And it has been almost 8 months since transplant. I still have a few issues going on and of course GVHD is always lerking around the corner. However, Dr. Khoury checks me out every month and adjusts meds accordingly.
God has been so faithful to us in so many ways I can't begin to name them all. Sometimes we go through trials to test our faith and sometimes to just bring us closer to him. Which ever we need always pay attention and Praise Him for the good and bad. That is hard to do, I know!!!!
Tomorrow will be mine and Sam's 33rd anniversary!!!! It is wonderful to be married to your best friend, soul mate, and great Father of your children. I thank God for him and especially in these last 2 years, what a trooper he has been. A caregiver like you wouldn't believe. Sam I love you so very much!!!!
I'm going to clinic on Friday and will give report after I get back. Big Praise is that my iron level has already come down alot.
Charmaine
Can you believe it has been a year since I entered Emory Hospital and started treatment for this dreaded disease. And it has been almost 8 months since transplant. I still have a few issues going on and of course GVHD is always lerking around the corner. However, Dr. Khoury checks me out every month and adjusts meds accordingly.
God has been so faithful to us in so many ways I can't begin to name them all. Sometimes we go through trials to test our faith and sometimes to just bring us closer to him. Which ever we need always pay attention and Praise Him for the good and bad. That is hard to do, I know!!!!
Tomorrow will be mine and Sam's 33rd anniversary!!!! It is wonderful to be married to your best friend, soul mate, and great Father of your children. I thank God for him and especially in these last 2 years, what a trooper he has been. A caregiver like you wouldn't believe. Sam I love you so very much!!!!
I'm going to clinic on Friday and will give report after I get back. Big Praise is that my iron level has already come down alot.
Charmaine
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